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Old Mon Apr 9, 2012, 06:15 PM
Chirley Chirley is offline
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Join Date: Oct 2007
Location: Logan City Australia
Posts: 1,100
Hi SLB,

Don't worry about joining the phone forum if you're still in hospital. There are a few of us who have joined in while still in hospital.

I was going to do it last time but I had a bad night and needed morphine needles. Thought I'd probably fall asleep mid sentence, not a good look

Is the QLD haem and onc group based at Greenslopes? I go to HOCA. I used to go to Chermside (live at Loganholme ugghh) but starting today I'm going to Mater South Brisbane.

If you get a chance it'd be great to have a lot of participants tonight, especially with Dr Tony Mills as guest speaker. I got my second opinion from him. He's really easy to speak to. He works PAH and Greenslopes.

JOYCE....sorry, I don't have any advice for you, there are far more medically savvy people on this forum than me. I hope someone can give you the answers you're looking for.

Regards

Chirley
__________________
Copper deficiency bone marrow failure (MDS RAEB 1), neuromyelopathy.
FISH reported normal cytogenetics but gene testing showed
Xq 8.21 mutation
Xq19.36 mutation
Xq21.40. mutation
1p36. Mutation
15q11.2 deletion
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