Edith,
How is your son doing now? I see that he switched to tacrolimus and then was off it altogether a month later! Why? And he was off all meds within 6 months of the initial ATG!! Wow!! Did he have the insomnia problems while on the meds? My Thomas has some ok days and then some really bad days where he can't fall asleep at night and so will go for 36+ hrs of no sleep (because of school or work-which he just quick yesterday) and then once he's asleep then will sleep for as long as we let him. I have had to call him in "sick" for school so many times so he can just sleep! He's trying so hard to be "normal" but he's not and I see from this forum that he never will be back to "normal" which just makes me so sad.
But normal is something different for all of us.
Thanks for everything!
Jodi