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Good news!
Hi All!
I have some positive news to report. After months and months of every-other week red blood cell transfusions, I am seeing some signs that my transfusion interval is lengthening.
When I reported for my mid-February regular every-other-week CBC, expected hemoglobin in the 7s, I wound up with an 8.5. We put off transfusion for a week, I registered a 7.6, and we transfused two units. That was a three-week interval.
Two weeks later, I posted and 8.2, and we transfused. A two-week interval.
Another two weeks and my Hgb came back an astonishingly high 9.1. So we waited two weeks more, I posted an 8.0, and we transfused two units. That's a four week interval.
So, things are looking up! Here's hoping that improvement continues.
On another front, I've been on 1500 mg of Exjade for 40 days now. I'm grateful to have had no side effects. Ferritin bounces around so much that I can't say for sure I've made progress on that front, yet. But I'm happy not to be having side effects.
Take care!
Greg
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Greg, 59, dx MDS RCMD Int-1 03/10, 8+ & Dup1(q21q31). NIH Campath 11/2010. Non-responder. Tiny telomeres. TERT mutation. Danazol at NIH 12/11. TX independent 7/12. Pancreatitis 4/15. 15% blasts 4/16. DX RAEB-2. Beginning Vidaza to prep for MUD STC. Check out my blog at www.greghankins.com
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