[ldonald]

Hi my mum has been been diagnosed with Refractory anemia with ring sideroblasts and thrombocytosis with jak 2 (RARS-T with JAK 2 she also has leukemic cells present in the marrow but doctor does not seem to worried about it.
She received a bone marrow transplant on December last year and it was unsuccessful. The doctor has now said that she is not suitable for a 2nd transplant.
Her spleen is now 6 times the original size and she receives blood every week which in result has lead to her feeling very fatigue.
The doctor has decide the next option is to try the JAK 2 inhibitor but as it is not licensesed this may take some time before it is issued
I write here to just get some understanding of the disease and if there are any other options out there?
Replies would be much appreciated