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I have looked that up in the past and some things didn't quite match up. She needs another transfusion. Hgb 6.2 today but we have to take her to the big city. Locally they won't transfused her as she has some funky antibodies in her blood. How often do you need transfusions? Every 3 weeks just seems so often, unless she has some hemolysis going on, but that's just my opinion and I ain't no MD! Today her platelets were almost normal and her WBC's were normal. That seems strange too... Do your bones hurt? And for whatever it's worth 1p syndrome is pretty newly found so there's not a lot on it. And she has a 5q duplication so that may change things up a bit too. Thank you so much for responding, I'll look up diamond blackfin again.
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