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Old Sat May 5, 2012, 11:05 AM
Coping1 Coping1 is offline
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Join Date: Jul 2011
Location: Kentucky
Posts: 15
Pinning down a diagnosis.....

I am new to this forum and am learning so much already!
I am seeing a hematologist locally and was recently sent to a BMT specialist. I have had a BMB locally and one at a BMT center. My hematologist here is convinced that I have myelodisplastic syndrome which will eventually lead to a BMT. The BMT Dr. seems reluctant to pin down a diagnosis. He says "in his heart of hearts" he feels it is MDS but it could be AA or hypoplastic myelodisplasia, but definitely some type of bone marrow failure.
He wants me to come back in 6 months for another BMB.
I have an autoimmune blood disorder that complicates things and the BMT specialist is worried that my blood disorder will significantly increase my risk of mortality with a BMT. My local hematologist feels that a BMT will eventually be my only chance because my blood disorder is triggered by infection and my white counts are so low that I keep getting septic. They seem to be a little at odds in my treatment plan.
I guess my question is, how do you deal with different doctors' opinions when you trust both doctors? I have known my doctor here for 30 years we have been through a lot together, but the BMT Dr. seems really thoughtful and straightforward.

Thanks so much for any insight you can give me!

~Coping

Last edited by Coping1 : Sat May 5, 2012 at 10:56 PM.
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