HughHC,
Fatigue is one of the issues that I've heard addressed at the
one-day patient conferences held by the AA&MDSIF. Perhaps you'll have a chance to attend one.
Reading Powerpoint slides from a session on fatigue isn't as useful as hearing and interacting with the medical professional themselves, but for what it's worth you might look over the slides from sessions at two recent conferences:
Beating Fatigue in Bone Marrow Failure Diseases - by Lillian Nail
It's Like Night & Day - by Dianne Shumay