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I had to wait an entire year to be able to do anything and then had to complete a written request via my transplant center that had to be approved by the donor. After that, however, I was provided with full contact information - name, physical address, phone, and email. The release forms for both of us included spaces for desired methods of contact. My donor asked about me throughout the year but was told only that I'd successfully engrafted her marrow.
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Karen, age 62, dx MDS RAEB-2 1/8/10: pancytopenia WBC 2.7k/Hgb 7.4/Hct 22.1/Plt 19k; complex cytogenetics -3,del(5)(q14q33),-6,+8,+mar,17% blasts. MUD BMT Johns Hopkins 11/30/10. Dx tongue cancer 8/31/12. ok now. blog mausmarrow.com
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