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Hello, I have AA, not MDS, so may be wrong here, but from the counts you gave it seems that he may be needing transfusions and lab checks much more frequently than he's getting them. For 9 months, until this past March, I was getting 1 unit of blood weekly, platelets every 2-4 days and labs 2-4 times a week. My team set transfusion thresholds of 10k for platelets and 25-26 for my hematocrit (which seems to be close to 8.5-9 for HGB.
I truly was at my clinic 5-7 days/week over that 9 month period. I had a treatment end march Which has reduced that a bit. However because I'm just starting to see some improved blood counts my team still has me come in for labs 2x a week.
How often are your dads doctors checking his blood counts?
Best,
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Dena
Age 54; DX Heavy Chain (AH) Amyloidosis 6/10; AutoSCT 3/11; Amyloidosis remission 6/11; DX SAA 7/11; Horse ATG 3/12; Mini MUD SCT 1/13; Recovered from SAA 5/13 & feeling great
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