New to Forum - Brother (36) might have Grade IV Gut GVHD
Hi all,
I'm Alfred - my brother's stem cell donor. My brother had MDS and did his chemo and stem cell transplant almost 130 days ago. At his 100th day, steroids were told to be lowered down, but he started puking and having diarrhea.
He was graded to have a Grade 3 Skin, Grade 1 Liver, and unknown grade Gut
He cannot eat, drink (except water) and was on nutrition pack for 30 days already.
We were told that the GVHD is steroid refractory. He has gone through the 2nd treatment - ATG, which showed no response except for some side effects for 1 week. Doctor is starting on the 3rd treatment and me and my mom were told to meet up with the doctors to "have a talk"...
My brother is only 36... he is extremely innocent... he has worked for people who never paid him, he gets bullied socially... and now he have this... for God's sake what has he done wrong in his life...
Please share me some thoughts and feedbacks and God Bless my brother that he can fight through this and let him return to his normal life...
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