[Hayitsmenadine]

Hello everyone. My name is Nadine and I am 25, about to be 26, years old and was informed by my dr today to stop taking cyclosporine. My counts have risen, especially my platelets and I have been taking cyclosporine since May of 2011. My hemoglobin has not been too responsive but my dr believes it is my PNH that is affecting that count. I asked him if I should taper down my dose and he said I can just stop taking it altogether. I am a little nervous that my counts will drop again.

Is there anyone on here that has been on cyclosporine and is now off it? If so, how did you stop the treatment and were your counts fine afterwards?

Thanks your time.