I agree with others who have responded to you over the last few days. That initial shock is hard to deal with, both for patient and caregiver. As has been said above, knowledge is power and this is a GREAT source for support.
It took me well over six MONTHS to gain the info I needed to partly understand MDS and be resolved to learn how to live the best I can. Please take a deep breath and know you are NOT alone with this.
It's been well over four years since my MDS diagnosis and I'm still learning more.
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Ric: Low-risk MDS (blasts <4%); 4 cycles Revlimid no positive response; PRBC transfusion dependent; so far, 392'units' over 8 3/4 years; BMB #4 (15/04/01) shows evolution to AML (blasts 20-30%
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47,XY,del(5) (q22q35),+21[24][cp24]/46,XY(1).