Thread: Hi from Ct
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Old Mon Jul 23, 2012, 04:29 PM
Marlene Marlene is offline
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Join Date: Oct 2006
Location: Springfield, VA
Posts: 1,406
It's difficult to say what kind of doctor you should see. I'm surprised your hematologist could not speak to the copper. Reversing low copper can reverse MDS in some. You may want to spend some time on this thread. Chirley has a metabolic issue with copper.

http://forums.marrowforums.org/showthread.php?t=2576

It looks like you have/had other nutritional issues. Have you ruled out gastro-intestinal issues? You should be checked for h-pylori. Also, gluten sensitivity can and will contribute to it. May will test negative for Celiacs disease but still have problems with gluten causing absorption issues in the gut.

BTW...your B12 should be at least 500.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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