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Old Mon Jul 23, 2012, 09:08 PM
milliken2 milliken2 is offline
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Join Date: Apr 2012
Location: Ellwood City, PA. U.S.A.
Posts: 163
Starting Fifth session of Dacogen - I question any response

Hello All;

Here are some of Earl's last blood draws - at this time, he had completed 4 sessions of Dacogen - we are just starting the 5th today

July 09 - WBC 4.4 RBC 2,57 Hgb 8.3 HCT 23.8 PLT 21

July 12 WBC 2.8 RBC 2.36 Hgb 7.7 HCT 21.8 PLT 16

July 16 WBC 1.7 RBC 2.56 Hgb 8.3 HCT 23.5 PLT 43

July 19 WBC 1.7 RBC 2.32 Hgb 7.5 HCT 21.4 PLT 39

July 23 WBC 1.3 RBC 2.5 Hgb 8.1 HCT 22.9 PLT 34



Of course, many other results are present, but he was transfused on 7/13 with 2 units of PRBC's and one large bag of platelets. He received another 2 units of PRBC's last Friday the 20th, and is due to get another 2 units on Wednesday the 25th of July. To me, this says that the Dacogen is not working, since he is getting 6 units of blood in less than 2 weeks. He is very weak, and his mouth is ulcerated making it difficult for him to eat. He has been using the magic mouthwash as well as Nystatin to swish - and has not had any relief. His mental cogntion is not what it used to be at all. Not even 2 months ago - it's worse.

Any ideas or advice would be appreciated.

Beth
__________________
Beth - R.N., B.S.N and wife of recently diagnosed husband who has been classified at stage 4 MDS. and I can't help the one I love the most.
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