|
Beth,
I wish I had some advice but just wanted you to know that I'm thinking about you and know this is a difficult time. They took Al off Vidaza after six months because he had no improvement, but I've wished they had given it a bit longer. I've read where MDS patients have not responded to Vidaza or Dacogen for seven or eight cycles and longer.
Hang in there and keep the faith. Believe me, I know it's hard, especially with your nursing background as you probably understand the numbers much better than most of us. Hopefully Earl will start responding soon and he won't need the transfusions as often and eventually not at all.
These are difficult days but know that there are others who care and we're praying for you and Earl.
God bless,
__________________
Linda, Al's wife, 75; dx MDS 5/2010; Vidaza 6/2010; ARRY614 & Sapacitabine clinical trials at Emory, no results, stopped 12/2011. Had BMB at NIH on 6/5/12, blasts 10-15% so he's not eligible for trial there. :eek Promacta trial, Tampa, blasts 25-30% 8/17/12 AML, trying Dacogen now and praying.
|