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Old Thu Jul 26, 2012, 12:55 PM
Birgitta-A Birgitta-A is offline
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Join Date: Oct 2007
Location: Stockholm, Sweden
Posts: 1,918
Dacogen

Hi Patti,
Too bad with Dean's severe adverse reaction to Dacogen though he managed well during the treatment!

You know when we have low neutrophils (the most important kind of white blood cells) we have to be very careful. Here is info about we have to think about: http://www.ssh.org.sg/Downloads/A%20...emotherapy.pdf

After three infections 2007 I got neutropenic fever with neutrophils 0.1. I was treated with antibiotics and Neupogen daily in the hospital and had to continue with Neupogen mostly 2 injections/week during 4 years. Since 2007 I live as if I have neutropenia just to be on the safe side.

Do remember that many drugs for example all pain killers can decrease platelets.

Hope Dean will feel better!
Kind regards
Birgitta-A
73 yo, dx MDS Interm-1 2006, transfusion dependent from dx, received 142 units of blood, Desferal and Exjade for iron overload. Thalidomide very low dose + Prednisone since 2010 with positive results. No transfusions since 2010.
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