Thread: Another problem
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Old Sat Jul 28, 2012, 09:35 AM
Al's Wife Al's Wife is offline
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Join Date: Jun 2010
Location: Jackson, Georgia USA
Posts: 205
Another problem

After we got up this morning, Al showed me the inside of his mouth and he has these big blood clots (I guess you would call them) inside the cheeks of his mouth on both sides. They look awful and I thought I was going to faint, although I didn't let him know that. I don't usually have a weak stomach. I guess it was just seeing them and knowing that it also is a sign of how his condition is deteriorating that it got to me.
He already uses the Biotene Mouthwash. Is there anything else we can do that might help or keep them from getting infected, which I've read on the boards sometimes happens? We see our doctor at Emory on Wednesday (and I'm really glad now we made the decision to go back there for our local care) and we'll talk to him about what to do then, but just wondered if the meantime if we could be doing something else.
Thanks,
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Linda, Al's wife, 75; dx MDS 5/2010; Vidaza 6/2010; ARRY614 & Sapacitabine clinical trials at Emory, no results, stopped 12/2011. Had BMB at NIH on 6/5/12, blasts 10-15% so he's not eligible for trial there. :eek Promacta trial, Tampa, blasts 25-30% 8/17/12 AML, trying Dacogen now and praying.
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