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Hi Kathy,
It is definitely a roller coaster ride but it does get easier. What the others have said is well put. One thing I have realised, mainly from reading this forum and others journeys, is not too focus so much on the prognosis stats that u can read. I think most don't necessarily take into account all the new treatments/ trials that are happening. And definitely read of other forum members journeys, I know it helped me when I was first diagnosed. What type of MDS does your husband have? How well did he tolerate his first treatment? All the best, stay positive, I'm sure you will discover strengths you never knew you had.. and you won't believe how quickly you adapt to all the terms and lingo!
Sharnie.
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Sharnie, 37yo, dx Mar 2012 RAEB II 13% blasts. 8 months of Vidaza. Transformed to AML in Nov 2012, induction chemo, no remission. 2nd lot of chemo, remission achieved. SCT with 8/10 match, Mar 2013.
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