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Thank you Beth,
I too am an R.N. and have never heard of MDS... it is ironic how our hubands are so similar in age ....John was diagnosed on July 3rd after having been in the hospital twice in the month before ....he has RAEB 1 with 5 - 10 % blasts and has had the 1 round of Decitabine due for another in a week or two ... 3 of his siblings are matches for him so the youngest has been chosen to be the donor for his stem cell transplant ... it hasn't been decided yet when this will be though...we are still overwhelmed by all of this.. he is neutrapenic so our life has come to a screeching halt for any activity,,,the thing that bothers him the most is that he was told to stay away from our grandchildren due to the chances for infection...life is certainly not the way we knew it....anyway ,thanks for taking the time to respond to me ... I really appreciate any advice I can get.
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