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Old Wed Aug 8, 2012, 06:14 PM
PattiDean PattiDean is offline
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Join Date: Jul 2012
Location: Clearwater, FL
Posts: 171
Second session of Dacogen, good news!

This is Dean's week for his second Dacogen treatment. He does fine during the time he receives his treatment.

As usual the office did blood work before Dean began his treatment, his numbers were unbelievable, compared to what they were when Dean was first diagnosed, and especially when he went in the hospital, on July 17, after his first treatment.

WBC 1.1, RBC 2.97, HGB 10.5, PLT 24 Dean was diagnosed end of June

WBC 0.3, RBC 3.01, HGB 10.1, PLT 3 July 17, after first Dacogen treatment

WBC 5.3, RBC 2.85, HGB 8.8, PLT 111 His counts today!


Dean's oncologist stopped his Neupogen injections last Friday. Dean had been receiving the Neupogen everyday for two weeks. Yesterday Dean's oncologist gave him a B 12 shot and Procrit, also wrote a prescription for Integra Plus, was concerned about Dean being anemic.

We still can't get over Dean's counts after only one and a half treatments of Dacogen. It looks like Dean may be starting Revlimid soon, we finally are getting somewhere with trying to receive the medication through the company.

Dean and I are afraid to get too excited about these numbers. We are new to all of this, and I guess we are not sure if this will be long term or just temporary, we aren't sure if we should celebrate yet, don't want to start too soon!

Dean says he no longer feels short of breath, and definitely not as weak as he has been feeling, still a little tired, but better than he has felt for a long time.

Hugs to each of you,
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Dean,age 76, dx MDS, RAEB-2, 17% blasts, June 2012 - May 2013 - Dacogen with Neupogen and transfusions as needed. End of May 2013 Dacogen stopped working. BMB July 2013 shows RAEB-2 and severe Myelofibrosis. Passed away September 30, 2013
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