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Patti...
Make your notes for the Dr. don't forget they are dealing with many patients with MDS and you are dealing with the one you love, and always, always get copies of all of the results....and keep your own charts of all the counts, get CD copies of all X-Rays and any other tests that are done....you will need these down the road.
This is where it gets tough...you have to be an advocate for Dean, you have to know the answers...it will be difficult at first, but the more confident you become the easier it will be, and the more you will understand..and this forum is always batting a 100%, so use it no matter how odd you think the question..
Your Dr. is right everyone with MDS is different, and every drug re-action is different.
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