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Hey Patti,
I think it's wonderful that you have gotten so much informative feedback to your questions. All the knowledge gained here should give you lots of info to talk to your doctor about.
Forgive me for hijacking this thread for a moment, but having read what everyone has to say about stopping treatments I have a question.
Since my husband Don has been taken off Promacta due to his platelets staying over 100,000 (for fear of clots), would it be possible that his counts could stay up? They dropped to the 80,000's at first but went up to 99,000 last CBC. I know Promacta is uncharted waters but I thought someone may know enough about MDS to give me some insight. NIH will start him back on it if his platelets drop to 50,000. He is currently on no MDS medication but is on 15 to 20mg/day of Predisone due to ulcerative colitis.
I wish everyone well who may read my post.
God Bless,
Sally
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