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Dear Beth,
I just wanted to throw my 2 cents in. Focusing on the tx is most important right now. My doctor would not let me begin with a gastro specialist until my counts rose and were steady. She was too concerned with infection or injury.
I agree wholeheartedly with Birgetta's response.
Good luck, there are definitely good days and bad days, its a process. The low counts from the other day are not the be all and end all, don't think that.
Donna
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f68 MDS; abmt 1/12. ABO mismatch 11 mos. (70) transf. Ferr 3-5k. 8 phlebot. AGVHD to CGVHD. skin,eyes. lungs as of 10/13. muscle weakness &osteo long term steroids.photopheresis 2x wk as of 3-15.pred 20 eod,acyclovir, mepron, voriconazole, pantropazole, lisinopril, montelukast, anoro, azithromycin.
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