[CatherineJ]

Hi all,

I have been living in London for the past year and I was diagnosed here as well. I am moving back to the US and I was just wondering what everyone else's experience has been with US hematologists. My hematologist in London said that I should get a BMB every year to make sure that I do not have any changes in my marrow even if my blood counts don't change. I've also been having monthly blood count checks here and my hematologist seems to think I should continue this on a monthly basis as well.

On a positive note, my platelets reached 122 on the last blood count check this week!!! My platelets have doubled since last fall when they were at 60 and its the highest they have been in over a year. It's very encouraging that my counts have risen without any treatment over the past year.

My neutrophils bounce around like crazy, I don't know if anyone else has had the same experience. One week my neutrophils can be at 0.90 and then two weeks later they are back to 2.

Grateful for any advice as always. So glad to have this forum.

Catherine