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Old Wed Aug 22, 2012, 11:16 PM
Chirley Chirley is offline
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Join Date: Oct 2007
Location: Logan City Australia
Posts: 1,100
Hej Beth,

I'm a nurse too and isn't it eye opening to be on the other side of the fence.. It's astounding how often medical and nursing personnel try to bully you into doing or accepting things without question.


I just hope I was never like that and I deeply regret any thing I might have done that made a vulnerable person feel more powerless. If I did disempower someone it wasn't on purpose but the end result was the same....hurting people who are already hurting.

I realize now that patients need to have a vocal advocate who are willing to be outspoken and even downright disliked as long as the patients best interest is being protected.

I have a high respect for your advocacy of Earl, I know how hard it can be when you see both sides of the story, know what's right and what's wrong, what to make a fuss about and what to let slide and have enough knowledge to be worried but not enough to be reassured.

I wish I had someone like you on my side....Earls a lucky man.

Regards

Chirley
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Copper deficiency bone marrow failure (MDS RAEB 1), neuromyelopathy.
FISH reported normal cytogenetics but gene testing showed
Xq 8.21 mutation
Xq19.36 mutation
Xq21.40. mutation
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