Beth,
All I can say is: Been there, done that! I am so amazed at the incompetence in the medical profession. It's scary. Some day we'll have to get together and write a book!
Hope you and Earl get some well-deserved rest. You are both in our thoughts and prayers.
I think I am at a more peaceful place. Hope it's not the calm before the storm. Lots of friends and family and celebration of Al's 75th birthday. I only cried twice today so I'm doing better.
Have a good rest of the weekend.
__________________
Linda, Al's wife, 75; dx MDS 5/2010; Vidaza 6/2010; ARRY614 & Sapacitabine clinical trials at Emory, no results, stopped 12/2011. Had BMB at NIH on 6/5/12, blasts 10-15% so he's not eligible for trial there. :eek Promacta trial, Tampa, blasts 25-30% 8/17/12 AML, trying Dacogen now and praying.
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