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Old Wed Sep 5, 2012, 12:13 PM
aplasticgirl aplasticgirl is offline
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Join Date: Dec 2006
Location: Canada
Posts: 90
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Quote:
Originally Posted by dfantle View Post
After reading Surfergirls post from Friday, I began to wonder if anyone else on the site who has AA, MDS or PNH, recalls taking Dapsone before their symptoms first appeared.

I was on Dapsone for a few weeks after my autologous stem cell transplant to prevent PCP (type of pneumonia). This was just weeks prior to my first AA symptoms so I now wonder if this may be the cause of my AA..

Please share if you experienced this as well...
I have been on Dapsone for 13 years and never had any trouble. My counts still are continuing to slowly rise.
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45 year old female. Diagnosed with SAA in 1998 at 31 years of age. ATG x2. Eprex. 200 Hgb/platelet transfusions over 14month treatment. Currently still on low dose Cyclosporine/Vasotec/Dapsone. Doing very well.
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