Thread: Family problem
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  #34  
Old Thu Sep 6, 2012, 06:55 PM
Chirley Chirley is offline
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Join Date: Oct 2007
Location: Logan City Australia
Posts: 1,100
Hi Sharnie, I go to the Mater Private for my treatment but I'd rather go to Greenslopes.

Unfortunately, my haematologist doesn't go there and I don't want to change doctors. I did get a second opinion with Tony Mills from Greenslopes. My doctor goes to RBH, Redcliffe, Mater Private, Chermside and Wesley. He's already stretched pretty thin, wish I could persuade him to add Greenslopes.

I received a phone call from Mums renal physician last night. Her kidney is failing again and he said that Mum can't survive with the amount of failure she has

She is having some tests today to see if she can recover some kidney function, including a scan of her arteries and a kidney biopsy. So, although Mums lungs are a lot better and the anaemia has been treated, the underlying condition is deteriorating.

I had to tell my Dad and my brother, telling Dad was one of the hardest things I've ever had to do.

I had a sleepless night last night so I might do some housework to tire me out so I don't think too much.

Regards

Chirley
__________________
Copper deficiency bone marrow failure (MDS RAEB 1), neuromyelopathy.
FISH reported normal cytogenetics but gene testing showed
Xq 8.21 mutation
Xq19.36 mutation
Xq21.40. mutation
1p36. Mutation
15q11.2 deletion
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