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Old Mon Sep 10, 2012, 10:49 AM
Sally C Sally C is offline
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Join Date: Dec 2010
Location: Chesterfield, Va.
Posts: 467
Hi Chris,
My husband started out with Trisomy 8 but all 3 lines were low. He received Campath at NIH in April 2009 and it got rid of the Trisomy 8 which is good but didn't do much for his transfusion dependency. He also tried Cyclosporine for about 9 months but had no response. He went into a new clinical trial at NIH in March of 2011 of Eltrombopag (Promacta) which you can read about under "Clinical Trials" and it has resulted in his becoming transfusion independent with his platelets as well as his red cells.
By the way, I'm a Charlotte native.
I hope this helps!
God Bless,
Sally
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