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Old Tue Sep 18, 2012, 08:52 PM
Chirley Chirley is offline
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Join Date: Oct 2007
Location: Logan City Australia
Posts: 1,100
I don't know what's going on. I have just received the blood test results taken before the start of this cycle of copper. My platelets had dropped again and my WCC was low too Hb and RCC were fine.

The confusing thing is my copper level was double upper normal! Way too much copper and I've had another week of high copper doses since then. I not get to see my doctor unti almost the end of the next lot of copper so I'm a bit worried that the copper level will be at dangerous levels. Also, if my copper isn't low, why are my platelets and WCC dropping?

I've started getting right upper back pain with referred pain to my groin. My doctor ordered a renal USS which I've just had, and a microurine which hasn't come back yet but the nurse took a dipstick sample and it was full of blood and protein with no white cells. As I'm supposed to have renal wasting of copper I was thinking it could be causing a kidney problem with the really high copper levels.

I'll just have to wait and see but it's a bit frustrating to have to wait three more weeks, the potential is there for kidney damage to happen while I'm waiting. I just can't afford to get sick with Mum and Dad needing me at the moment.

Regards

Chirley
__________________
Copper deficiency bone marrow failure (MDS RAEB 1), neuromyelopathy.
FISH reported normal cytogenetics but gene testing showed
Xq 8.21 mutation
Xq19.36 mutation
Xq21.40. mutation
1p36. Mutation
15q11.2 deletion
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