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I just finished reading Unaccountable by Marty Markay MD. He's a surgeon at Johns Hopkins and he echoes your comment Chirley. Basically, most do not know if they got good care or not. There is a transparency issue in our system and we, the public, have very little data to help us make good decisions about our options.
I know Hopkins was very strict on tubing. It was not allowed to touch the ground which meant John was on a short leash from his IV pole. He had two pumps which allowed multiple meds to be infused at the same tim. I think each could handle 8. I don't think they ever let any of the lines hang unconnected. The tubing going from the pump to his lumens, which stayed connected, was changed weekly along with the caps to his hickman.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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