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I was exactly like you when first diagnosed and actually still just want tho get going so I can get back to living without this ruling my every thought! I was originally told I was "generic" so shouldn't have an issue finding a registry match (my 3 siblings didn't match). However I believe while I match on initial testing when they delve further in (sorry you will have to call on some of the other more knowledgeable ones for technical details ) I didn't match with anyone perfectly. So lots of layers involved to their testing I believe?Then they still need to find the person and assure they are still physically able to donate & willing. However you are off to a good start with that number of initial matches. Good luck.. can I ask what type of MDS do you have? Blast levels? But definitely understand your frustration and wish you all the best with your journey..hope it goes fast for you..
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Sharnie, 37yo, dx Mar 2012 RAEB II 13% blasts. 8 months of Vidaza. Transformed to AML in Nov 2012, induction chemo, no remission. 2nd lot of chemo, remission achieved. SCT with 8/10 match, Mar 2013.
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