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  #134  
Old Tue Oct 30, 2012, 10:49 PM
Chirley Chirley is offline
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Join Date: Oct 2007
Location: Logan City Australia
Posts: 1,100
Hi, I contacted the treatment centre myself and the secretary I usually dealt with told me that management had not asked her either for my files or for her to contact me. She also said that there was no record on the computer that I had refused treatment or changed doctors.

Carol gave me her email address and we circumvented the organizational obstruction by sending her my permission in writing to release my records, who to release them to and the fax number of the new centre. Carol is going to deal with it personally. I hope she doesn't get into any trouble.

Carol sent me a receipt for my email with a personal note that was very supportive and wished me well for the future.

I feel a little sad that the centre I have been attending and where I have developed friendship and respect for the staff, have such bad management and are so profit focused that they are willing to sacrifice staff morale and patient care.

Oh well, time to move on..regards

Chirley

Ps my doctor has not written the discharge letter I've requested either.
__________________
Copper deficiency bone marrow failure (MDS RAEB 1), neuromyelopathy.
FISH reported normal cytogenetics but gene testing showed
Xq 8.21 mutation
Xq19.36 mutation
Xq21.40. mutation
1p36. Mutation
15q11.2 deletion
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