Myleofibrosis
Hi ,
i am new to this forum
I am 61 y , and 3 y ago i had a diagnosis for ET ( i had 900K platelets ) .
I started with hydrea ( 2 pils /day ) ; 4 months later i got severe pain in my hips ; lowering Hydrea to 1 pil/day solved this ( platelets where then 700K );
later on the platelets decreased ( +-570 K ) and i continued hydrea ( 1 pil in 3 days ) .
Till 9 months ago ; my WBC ( before 14K ) were up to 24K ; platelets were 480K ; Hema 10.
I stopped taking Hydrea.
I did a BM test in may and they found nothing special ( they did 5 different tests on it ) . They asked advice on the best external specialist , and he said its Myleofibrosis.
The bloodtest 6 and 3 months ago and now showed the same : WBC 24K , platelets 470K and Hema 10.
The doctor told me there where some things in my blood that shouldnt be
there ; blasts was 1,5%.
At present i have not much symptoms ; faster tired and short of breath sometimes .
Does anyone recognize this situation ? Is this MF or something else ?
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