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So nice to see an update on Al, Dean and Earl. I don't log in often enough these days but I'm thinking and praying for you all often and will include Laura & Lee as well!
As for us, mom is doing okay. I think we're going into our fourth or fifth cycle of Dacogen. She went almost six weeks with out a transfusion and then needed a couple pretty close together. Sighs.
Recently she's developed some purpura on her forearm. It cropped up there a couple weeks ago and then faded and then came in pretty dark again last night. I have a call in for the nurse. Does anyone have experience with this? My mom is chalking it up lifting the baby too much, but I don't want to downplay it, if her platelets are starting to take a hit now that she's been on the Dacogen for a while. Definitely don't want to wait like we did on the Revilimid after it started have ill effects.
Thanks and all my best!
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