Hi, you can find many fellow PNH patients over at the PNH support group, more info too,
www.pnhdisease.org
The first doctor may be further but she's very good with PNH. Also she has a very promising PNH drug trial going.
Dr Illene Weitz, U of Southern California, LA
http://www.ohsu.edu/xd/health/servic...rs/meyersg.cfm
Dr Gabrielle Meyers, Oregon Health & Science:
http://www.ohsu.edu/xd/health/servic...rs/meyersg.cfm
Susan