Dr. Maciejewski recommended I take magnesium oxide for the shaking. It helps. Check with your doctor.
It took me three years to find a doctor(s) who understood PRCA. Before that, I was going up and down just as you are, and my doctor had little experience and was somewhat clueless because PRCA is so VERY rare. Once you find the right doctor everything will suddenly start falling into place.
In addition to the three doctors I have recommended to you, you might contact this guy in St. Louis. It may be closer to you.
http://hematology.wustl.edu/faculty/...aubertBio.html
I got his name from the
www.AAMDS.org website. You might call them and talk to the patient educator for further help. She was the person who helped me the most.
http://www.aamds.org/support-and-com...tient-educator