Hello K, I too am 63 with RA MDS and Intermediate to Low Risk. Because I do not "fit" into a box, I asked my Hematologist for a second opinion and was referred to the top MDS Specialist in Vancouver, Canada who I saw yesterday. He took an exhaustive history - asking where I had lived at different stages of my life (city, rural, agri etc.) asked what were the types of industries in those areas (in UK), asked family history, symptoms, etc. etc. It took over an hour and he told me he was a little late seeing me because they had had a conference about my case beforehand. I was told that at 63 I would still be a good candidate for BMT and that he would start doing some bloodwork to determine immune response etc etc. I went to the laboratory at the hospital - and 19 vials of blood later - returned home. I tell you this because I am very anxious about this diagnosis a) because my risk puts me at living 5-10 years and b) because I want to see my grandson graduate (he is 7) However, I want you to know that the taking of that exhaustive history as well as his confidence that I am NOT too old for BMT, made me feel well looked after. I strongly suggest you get copies of every blood test and track them in a spreadsheet if possible. If not, file them in a binder by date and take them to each appointment. Ask lots of questions and if possible, have them written out beforehand so you can record the answers. I probably only hear about 50% of what is said, so hope my hubby catches the balance
Your mom is lucky to have a daughter that is so caring and wants information that will ensure the very best. I wish your mom the very best and encourage you to keep posting questions and hopefully we can help through our experiences. As somebody said, lean into it, and remember to take a deep breath. Big hug, B