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Jill and Ece,
I am sorry for your loss. I too lost a parent to MDS this month. My mother died on Nov 13. She was very private while she was alive, so I never posted here. However, I got comfort and information from all of you - and I am thankful for your support. My mother never gave me the particulars of her MDS. I know she had refractory anemia - but that was all she shared. She was diagnosed in February. She tried five rounds of Vidaza and two months of Revlimid - but never got any better. She had had good blood work a year ago - so this seems to have come on quite quickly. In end, it was pneumonia which took her. She was 79 years old.
My only comfort is that she was not in pain except the last day. She was a brave soul and will be missed by my dad and her six kids.
Take care,
Danette
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