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Old Wed Jan 2, 2013, 11:33 PM
Bambam Bambam is offline
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Join Date: Oct 2012
Location: Vancouver, BC, Canada
Posts: 59
Travelling to Europe with MDS

I'm struggling with a decision: to go or not to go. We bought a second home in Portugal two years ago - this was to be our winter home in the subtropics of Madeira Island. That has all changed now, thanks to MDS. Or does it have to?
My husband wants us to go this month to put the house on the market but I am nervous about travelling 1) because there is Dengue Fever in Madeira and although it is less active in Winter, and of the least dangerous type (worst produces hemorrhagic fever) it can still make some otherwise healthy people very ill and needing transfusion and 2) because I am a little scared of travelling given the unknown of this disease.
My question to those of you who have lived with this disease for a while is whether you have travelled? To where? Where would you avoid and why? What precautions did you take? What was your hb when you flew?
Any thoughts that will help me to make this difficult decision would be much appreciated. By the way, pre-diagnosis, I was an avid traveller.
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DX MDS RA Low Risk August 2012. DX Changed to MDS RAEB1. Progressed to AML July 2013. Participated in clinical chemo trial CPX351 and relapsed four months later in March 2014. Maintenance chemo -VIDAZA (AZA) stopped after 4 rounds. Awaiting full report from BMB.
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