Thank you
It's very comforting to know someone eles has been this low. I was sitting in my car (parked) just staring at the results frozen for awhile. Thinking nooooo! What do/can I do!!! How low is someone humanly able to go!!!
I really appreciate you responding and the second part about advancements being made. At this point I have no idea the game plan. We're just staying w eculizumab and drawing more labs Monday.
I talked to my boss today about taking days off to volunteer w be the match, regional gulf coast blood, and support group meetings and he was so cool and helped me realize i am not the Dr but I can help in some way 
__________________
Heather, wife of Ronald 36; dx PNH 2012; Dx VSAA 2013; eculizumab(Solaris) hATG 2/20/13 cyclosporine 400 mg daily. 37 units RBC and 15 units of platelets. Post BMT -pentam,vorconizole,valtrex, valcyte, actigall, Pepcid , prograf, magnesium.
10/10 MUD 10/10/13
Now no PNH or AA. Mixed Chimerisim
|