[milliken2]

Hello Everyone;
Thank you all so much for your concern, understanding, and most of all your prayers. I can't even begin to tell you how much it means to have your support.
So - tomorrow they are supposed to come here and set up his ICP (Individualized Care Plan) - but that means he won't get any therapy until Tuesday of next week, since they don't do it on the days he goes for blood draws - but I told them - it is going to be difficult - since he might have to go in the following day - or the day therapy is scheduled for a transfusion.
But - we did get home around 6 PM - toasted each other with a glass of wine - and he was off to bed shortly thereafter. It has been a long week for both of us. But hopefully things will improve.
Again - thanks everyone.
Beth