[MDSnAL]

I found your site a few days ago and really appreciate all the insight!

My mother was diagnosed with MDS on January 15th of this year. She started treatment with Vidaza and Aranesp last Tuesday. They checked her blood that day and said it was low so she got 2 units of blood Wednesday followed by her second treatment. Her blood pressure dropped very low during the transfusions and continued to be low during her treatment but nurse practioner thought it was due to so much Benadryl in the past two days. Thursday morning she was incoherent and we had to call 911 to rush her to the ER. They diagnosed her with pulmonary edema due to possible congestive heart failure. She was treated with lasix Thursday and was discharged from the hospital Friday (yesterday). Today she was lethargic again so we had to call the paramedics again this afternoon. She is back in the ER and doctor says he hears fluid again.

Her oxygen level has been extremely low and we have her on oxygen but that does not seem to be enough.

She is 77 and has some autoimmune diseases and high blood pressure.

Has anyone else had a similar experience? Does anyone have any advice or thoughts on questions we need to ask?

Thanks in advance...and please keep posting your experiences as they are invaluable to recently diagnosed patients and their caregivers!