|
Thank you for your replies Cam and Neil. It is a very difficult situation with my mom, but I had a very serious heart to heart with her Friday and have made my decision to go ahead as soon as possible. The timing worked out because I happen to see my Doctor yesterday at the very first MDS patient and family information and support session. We had Dr Lewis R Silverman from Mount Sinai Hospital in NY speaking as well as My Doctor Rajat Kumar and many others. Unfortunately they did not cover transplant in this session because I am the only MDS patient in Manitoba that is eligible currently. I am the youngest patient in Manitoba. To complicate matters a bit further, I also have Myeloproliferative disease with a positive JAK2 mutation, so I cannot have stem cell. Thank god I have a sister who is my match I think 8 or 9 out of 10 and she is ready to go at any time. My next Dr's appt is on the 20th so I will know more.
__________________
Tammy, age 50; Diagnosed MDS Deletion 5Q- in 2008;
Currently on Lenalidomide.
|