I'm new to all this & don't know what to think. My husband was just diagnosed with MDS in the last two or three months. They started him on Vidaza immediately. He had his first treatment in the hospital in December, his second in January & just finished his third series on Friday this week. They took two marrow biopsys but couldn't seem to get enough aspirant so the oncologist could not decide if it was MDS or AML. We finally visited with a Transplant specialist who said it's definitely MDS.
Right now my husband looks good (so they keep saying) & has not had bone pain or any fevers. Those seem to be big points. He has had at least 2 full transfusions each month plus extra platelets in between. He bruises very easily is cannot exert himself at all.
I don't know what to expect next. I do know a lady who had about 8 months of Vidaza & it put her into remission - although she gets weekly shots of something called nupogen (sp?) He has low blast counts but I'm only now learning what that is - I think. This is all so confusing.
We are still waiting to hear if his sister will be a match for him but they don't seem in a rush to learn about it.
Does anyone have any advice or knowledge to impart?
Thanks -
Beth E.
