I don't mean to scare you but I am Norwegian and have heard of Shark Liver Oil. It is used in many treatments in Norway. I heard that it is an ambiguous drug. It can heal but it can also increase risks of cancer. Let me know what you find in your research. I do know that many drugs can do the same such as cyclosporine. The doctors told me it was a 5% risk but I am reading other statistics. Either way I do wish you well. I only mention this because I was going to take the oil myself. Maybe it does work. If so that is great but I'm not sure, so it would be wise to consult other doctors or specialists. Good Luck
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Originally Posted by Hayitsmenadine
Hello everyone,
My name is Nadine and I was diagnosed with aplastic anemia and PNH in May of 2010. I am currently on Soliris and shark liver oil. I was on cyclosporine for 14 months and as of December 2011 I have been blood transfusion free. My levels are still on the lower end but are manageable. My platelets have been dropping and rising which led to me to seek alternative treatments.
Yesterday I went to see a holistic dr referred to me by a family friend. She said she was able to pinpoint the cause of my disease and how to treat it. Apparently I have formaldehyde toxicity in my liver. My spleen is overproducing red blood cells that my liver isn't breaking down. She did some pressure points on my liver and spleen to get circulation going and prescribed me cardio plus pills. I was also told not to eat any products with sodium nitrate (packaged lunch meats and subway.)
I am a very open person to new ideas and I am remaining hopeful that in 8 weeks I should be fine again, as she said. I am just wondering if anyone else has seeked out holistic treatment and how their experience was? I will keep everyone posted about how this whole treatment pans out.
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