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Old Mon Feb 18, 2013, 03:17 PM
Birgitta-A Birgitta-A is offline
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Join Date: Oct 2007
Location: Stockholm, Sweden
Posts: 1,918
Transfusion dependent

Hi Calimom,
Your mother is now perhaps transfusion dependent - patients that need 2 units/month or more are considered transfusion dependent. Good that she responded so well at Procrit/Aranesp injections!

Transfusion dependency is very common among MDS patients - I was transfusion dependent at diagnose 2006 with a HGB of 7,0.

It is important that her blood is tested often - I do blood work every other week except when I try new drugs when my blood is tested every week due to low white blood cells.

There are some other test results that are important - a kind of white blood cells called neutrophils (fighting infections) and platelets (helping the blood to cloth).
Kind regards
Birgitta-A
73 yo, dx MDS Interm-1 2006, transfusion dependent 2006-2010 when I started treatment with Thalidomide + Prednisone. Good response 33 months but now I have received 2 units of blood. I will probably try Revlimid + Prednisone.
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