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Thanks for the response, Neil. She will have a Reduced intensity transplant and we just got the dates. She is getting a PSCT two days after her birthday, March 22.
Right now, she has completed a 4th round of dacogen and her blast levels are below 5%. So now she has RA instead of RAEB2 MDS. It has been a crazy journey to get her here. She has had one round of pneumonia (back in December) and her neutrophils dropped to 0. She stayed inside and away from people until her ANC improved. We are trying to keep her healthy and with a 1st grader and a baby in the house, it's a challenge.
From her calendar, she will have 4 days of busulfan and 2 of fludarabine followed by 2 days of rest prior to transplant. Is this pretty common? How sick will this make her? She is feeling pretty good right now, gets tired easily, but her blood counts are much better than where we started. I'm worried about the whole transplant process. Somebody tell me it will be fine and she'll do well.
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K, daughter and caregiver of Em - age 64 dx Oct 2012 with RAEB MDS Intermediate risk. BMT on 3/22/13.
Last edited by kwaidz : Wed Mar 20, 2013 at 08:36 PM.
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