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Old Sat Mar 9, 2013, 01:17 PM
Maji Maji is offline
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Join Date: Mar 2013
Location: Aurora, Colorado
Posts: 2
Neuroencephalopathy and the JC Virus

A little over a year after having had a liver transplant, I have developed a neurological condition brought on by Cyclosporine and immunosuppresants. The JC Virus is resident from birth in most people. Ironically, this virus can be reactivated by these drugs, and it is fatal. Four to five months life expectancy from the point of diagnosis. I noticed a very old post in these forums from a lady whose husband had passed "peacefully" from the disease. This is my biggest fear. The thought of losing my clarity, cognizance, ability to move around is terrifying. My husband and I have always enjoyed intellectual discussions and sparring with one another with words. I NEED to talk with somebody who can tell me what kind of death I have ahead of me. The doctors are entirely too meek about this, and I need some straight talk. Does anybody in this forum have information that can help me? I appreciate any input you are filling to share. Thanks, Maji
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