Hi, I was told "possible" MDS for 6 years. Then BMB said MDS RARS, then next one said MDS RCMD, then next one said MDS RAEB. Then I was found to be copper deficient. Having copper replacement therapy. BMB still states MDS RCMD but peripheral counts good and no longer requiring transfusions.
It's almost certain I do not have actual MDS but more like a pseudo MDS that is treatable.
Hope this helps, sometimes chasing a diagnosis is very frustrating.
Regards
Chirley
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